Sean Hanson

My Great Strides Story

A little cystic fibrosis (CF) background.  Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. These people are  moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for me and all of them! 

I was diagnosed with CF at birth, a newborn screening.  My mom tells me it was the only test she ever wanted me to fail!  Well, as we all know, I passed with flying colors and the rest is history!  My family determined I was going to be a 'normal' kiddo and I have a pretty normal life.  I attend school each day. I love my school community and all of my friends - SOTI rocks!  I do normal 5th grade boy stuff.  I LOVE and play soccer, basketball, and golf. I am able to spend my time practicing, doing homework, playing video games, and hanging with my 'brughs'.  I am lucky!  I do have a compression vest and breathing treatments but, those are much easier to manage with the help of some CF medications.  It is donations from people like you which help those medications be developed!  

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF.  I am fortunate, I am one of these people. I hope with donations from you, the CF Foundation will continue to make breakthrough medicine easier to receive and they will find more opportunities to allow people with CF to live easier lives.  Still, many people with CF do not benefit from existing therapies. The CF community has a vision, a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.  You can see in my picture I love to score soccer goals - last year I was able to exceed my goal - let's hope this year I am able to do this once again and exceed my fundraising goals to help with CF research.     

Thanks for always supporting me each year and in all my endeavors!  

Sean