Jobi Ferguson

Hello Everyone!

It’s that time of year again when we all gather for the annual Cystic Fibrosis Great Strides Walk in Annapolis!

I want to start out by saying that this will be the 25th year of Jillian’s Jaywalkers continued fight for a cure! Holy cow, can you believe it’s been 25 years? That just blows my mind. I don’t know how to begin to thank each of you who have been with me since Day 1 or joined later and stood with me and my team for so many years. The donations, prayers, words of encouragement, and love have not gone unnoticed. I will be forever grateful.

Looking back on these 25 years, I can see how far the understanding of this disease has come. With new treatments rolling out every few years, it is a proven fact that all money raised for Cystic Fibrosis is working towards a better future for all of us. I am proof that it is working, each and every day!

I had a check-up at Johns Hopkins in March, and it was the quickest visit I have EVER had. Since I am doing so well on Trikafta, the doctors did not have much to say with regard to how I can improve my health. Which is something I am not used to at all! On top of such a good report, my lung function increased again - icing on the cake! It has now been multiple years of “0” hospitalizations, all because of Trikafta!

Once again, I want to thank each of you, and I look forward to seeing you at this year’s walk. Please join us at the Navy-Marine Corps Stadium on Saturday, June 1, 2024. Registration begins at 10:00 am, and the walk begins at 11:00 am. You may register and donate on this site. Don’t forget to wear your Jillian’s Jaywalkers t-shirt!

Don’t miss out on your chance to win a quilt lovingly designed and made by my Aunt Cindy! More information to come! Contact my mom, Jobi, at 410-507-0674 for raffle tickets.

Soon, I hope that an even better drug is created from which ALL of the CF community can benefit. I want everyone to feel as good as I do and live life to the fullest.

With Love,

Jillian