It's that time of year again when I walk to support Cystic Fibrosis. The donations and support that have been made over the years have developed an amazing new mediation called, Trikafta. This medication has been a life changer so so many. Two of those people are my nephews, Chase and Tyler Smith. Chase has been able to stop taking all of his medications and is engaged. Tyler, who is 6 years post double lung transplant, no longer has issues with his sinuses or stomach. He is married with a 3-year-old daughter.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease. We’ve come so far, but there’s still so much work to do. I will not stop striding until CF stands for "Cure Found".
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.