Most of you know my story and the reason I walk and will continue to walk and volunteer at Cystic Fibrosis events. My nephew John was diagnosed at a very early age with this deadly disease. Unfortunately we lost him 14 years ago at the age of 24.
Thirty six years raising awareness and funds for research has paid off. A new drug was approved which can help around 90% of indivduals with this deadly disease. But we are not done. I continue on this very important quest to raise awareness and funds in honor of John and hope that they will find a cure soon.
Will you join my team and support my Great Strides fundraising goal? Remember every dollar counts!!!! We need you!
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community and help find the cure that will help everyone.
Let’s make CF stand for Cure Found.
God Bless!
Darlene Settino Joy
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.