As you may know, Kristin Wise was the former Development Director of the Cystic Fibrosis Foundation, Central NY Chapter. In her three years of working for the CF Foundation she has become incredibly invested in the lives of those living with CF in Central NY, getting to know many families personally who are affected by CF. Because of this connection, Kristin and her husband Chris have become incredibly passionate about finding a cure for CF. That is why Team Wise was started!
The CF Foundation is the worlds leader in the search for a cure for Cystic Fibrosis and nearly every CF specific drug available today was made possible because of the CF Foundation. The CF Foundation supports research to discover and develop new CF treatments and maintains a pipeline of potential therapies that target the disease from every angle.
In 2015, the United States Food and Drug Administration approved the second drug to treat the root cause of cystic fibrosis, a defective protein known as CFTR. The first drug targeting the basic genetic defect in CF was approved in 2012. The arrival of this group of drugs, called CFTR modulators, signals a historic breakthrough in how CF is treated. It's expected that CFTR modulators could add decades of life for some people with CF.
Today, the Foundation is focused on developing lifesaving new therapies for larger numbers of people with CF and pursuing daring, new opportunities to one day develop a lifelong cure.
All this was made possible by individuals like you. YES YOU who is reading this sentence right now. The CF Foundation recieves no goverment funding. It is all made possible by people like you and it's people like you that will help us find a cure.
BUT we cannot do it alone, that means we need your support!
Please register to walk with us at Great Strides and donate $5 ( the cost of a cup of coffee) or more towards helping us to find a cure for CF!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.