We are a Syracuse extension of the (Westchester County based-) Cousins for a CURE team to support Brianna - Aimie's "niece" and one of Madeline & Emily's closest friends.
Thanks to donors like you, researchers have been able to develop medications that allow Brianna to reduce her daily therapy sessions to once a day which gives her an extra 3.5 hours a week to be a kid! Your donations make this possible! Who knows what your donations can make possible tomorrow...
Brianna's mom, Erica posted the following on her walk page this year:
"The last time I checked, the life expectancy of someone with cystic fibrosis was 46. Today the life expectancy is 53. Since I checked the stats 1 year ago we have added 7 years to this number. And yet... as I approach my own 40th birthday in a few weeks.. 53 just doesn't seem like enough time.
Brianna is so very lucky to be eligible for life saving medication that treats the underlying cause of the life threatening symptoms of cf. There are still, unfortunately, some cf patients whose genetic mutation makes them ineligible for these medications. They are still waiting for their miracle medication. And we are all still waiting for a cure. So we fight. We stand together and we fight until all people with cystic fibrosis have a chance to live the life they deserve to live and reach the goals they have set for themselves.
I can vividly remember writing Brianna's walk letter 6 years ago before she went off to preschool. I was so full of fear and uncertainty. I sit here, what seems like a few weeks later, on the precipice of another huge transition... middle school. Next year Brianna's independence and responsibility for taking care of herself will truly be put to the test- and my Mama heart hopes and prays that we have prepared her enough.
If you can donate to help make CF stand for Cure Found we would be immensely grateful.
If you can keep us in your prayers we would be so very thankful.
From the bottom of our hearts- thank you.
Please consider joining our team and/or making a donation.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.