There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, as life expectancy has increased from 30 years to 46! However, there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support our team!
Cystic fibrosis is a genetic disease that has affected us personally. When our now 6 year old son, Eli, was just one week old, we received a phone call that no new parent would want to receive. Our baby boy's infant screening test showed that he was in need of further testing to determine whether or not he definitively had cystic fibrosis. Never having heard of CF and certainly never having met anyone with the disease, we were skeptical and were certain the doctors had made a mistake. After meeting with doctors in both Syracuse and Albany, he was given the official diagnosis. This disease affects both the lungs and digestive system as it produces a heavy mucus that clogs airways and traps bacteria causing those with CF to be more vulnerable to lung infections. The heavy mucus also prevents digestive enzymes from reaching the small intestine and allowing the body to properly absorb nutrients. We have been blessed beyond measure when it comes to our sweet Eli as we continue to receive positive reports regarding his diagnosis. The Cystic Fibrosis Foundation has and continues to conduct life-saving research which is helping to increase the longevity of life while also increasing the quality of life. This is only possible due to the generosity of people like you! We truly believe that a cure is possible and truly appreciate any donation you can make. Please join us for the Great Strides walk on May 18, 2024 at Delta Lake State Park. Registration is at 9 and the walk will begin at 10. Thank you, from the bottom or our hearts!
Love,
Mitch, Melissa, Eli and Micah
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.