Sean Kelsey

Event: Syracuse

| Team: Friends of Nave Law

Sean's Fundraising Goal: $300.00

| Amount Raised: $210.00

70%

My Great Strides Story

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CF Fighters!

“In a gentle way, you can shake the world”.

This maxim drives Sean to give his all in transforming the lives of people living with Cystic Fibrosis (CF).
I have always been compassionate and charitable. However, my real transformation came in 2017 when I was introduced to Grace, a gifted girl diagnosed with CF. Grace epitomized endurance, courage, and positivity amidst the challenge she faced. She spoke boldly to educate other people on what CF was, hoping that they would help find a cure for others, including her brother. Since then, I have been part of the Central NY Cystic Fibrosis Foundation.

Listening to individuals with Cystic Fibrosis like Grace, you realize that life is a struggle for them. Cystic Fibrosis robs them of their childhood joy. Their schedule includes taking several medications each day, adhering to strict nutrition and exercise, and using a nebulizer. Worse still, they have to deal with recurrent infections, which cause them to miss school and to be away from their friends.

Support, volunteerism, and philanthropy are paying off day after day. Remarkable medical advances such as the development of the 2019 modular therapy, Trifakta may help up to 90% of people with CF. However, for Grace and others who suffer from specific mutations of CF, the condition remains incurable. Therefore, the Cystic Fibrosis Foundation needs collective efforts at every facet to eliminate CF. Sean believes that CF can stand for Cure Found due to fundraising efforts that boost medical research, elevating the chance of finding a cure for all.
I have also been part of 65 Roses, Great Strides, CF Golf Classic, Tomorrow’s Leaders, and a board president of the Central New York Cystic Fibrosis Foundation and Annual Fund. I and also involved on the national board for Tomorrow Leaders, where young leaders help transform their societies through research, empowerment, and charity. In addition, I have been rewarded with honors such as Champion for a Cure for Cure, Hero of Hope, and CF Volunteer of the Year.

I am a member of Nave Law Firm, where I work as the Chief Operating Officer. The Law Firm shares my values and vision of putting people before profits and finding solutions to solve problems people face every day.

My life out of office is equally gratifying. Sean treasures every moment I spend with my wife, Danielle, and our two beautiful daughters, Rylee and Dylan. The best thing to come out of the quarantine period is to spend more time with family. The worst thing has been explaining to the children the effects of the pandemic.

Achievements

T-Shirt

Raised the amount of money defined for this milestone

Personal Progress:

of Goal

$210 Raised

$300.00

Fundraising Honor Roll

Mr. Sean Kelsey

$100

Facebook Fundraiser

$50

Facebook Fundraiser

$40

Facebook Fundraiser

$20

IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:

Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.

CF Fighters!

Achievements:

Sean Kelsey

My Great Strides Story

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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

National Peer to Peer Silver Sponsors

National Great Strides Sponsors

Outstanding Corporate Supporter