Hello again friends and family,
Do you believe it’s been 22 years of Team Tess with the CF Great Strides Walk? We would love to have you join us again May 13th at Willow Bay in Onondaga Lake Park. Check-in 9:00, Walk 10:00.
Tess’s health has been so much better since starting Trikafta in August of 2019. You may remember that this was the drug that we had been waiting for that treats the underlying genetic cause of CF. During her first in-person doctor’s visit since Covid started with her CF care team, her lung function was up 10 points compared to 2 years ago. THAT’s a BIG deal! Also, this week she had an appointment with a surgeon to remove her g- tube she used to need for extra feedings, which she’s had since she was 12 years old. However, she is still tasked with making sure to eats more food because she burns extra calories even by just breathing – but the joy that has brought her has been amazing.
We are so proud that she has graduated from SUNY Brockport with a BS in Public Health and stated a new job in January. Back in early 2000’s we were afraid to dream of this day!
Tess hasn’t had a hospital stay in the last 3 years! (Knock on wood). You may recall that for many years, she was being admitted for IV antibiotics every few months. No IV antibiotics lately - which is a HUGE win! She had her feeding tube removed this year too. She even joined a gym! She has given support and advice to her younger sister enjoying college life at SUNY Cortland.
Please snap a pic of the QR code or click on this link: https://fightcf.cff.org/site/TR/GreatStrides/14_Central_New_York_Syracuse?px=2243313&pg=personal&fr_id=9498 to join Team Tess and consider a donation to the Cystic Fibrosis Foundation through Team Tess portal. We are always so grateful for your support over the years because it has truly helped drugs like Trikafta become a reality and make a tangible difference in Tess’s life - and our lives as caregivers. We will stay in this fight until the end, until there is a cure for everyone with CF, and we hope you will continue to fight along with us. Thank you ALWAYS!!
All the best!
Mary, Mike, Tess and Taylor Michaels
4953 Limehill Drive
Syracuse, NY 13215
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