I first heard about Cystic Fibrosis when I fell head over heels for a guy in a punk rock band. His name was Alex Popoff. I use to see him at the punk shows and thought he was just so cute, but was too afraid to approach him. So when my sister Kat decided to set me up on a date, it was unbelievable that it was him. He came and picked me up from work one night, and I was shocked that it was that guy from the shows and he was here for ME. After getting to know each other a bit more, Alex opened up to me about his diagnosis. Given 6 months to live at birth, he lived to be 24. Sadly, on June 12, 2002 Alex passed away from complications due to CF.
While we were together for only a year, Alex taught me so much. He taught me to live each day with gratitude, he was helping me with self confidence/self love and even taught me to drive. While I struggle with some of those lessons to this day, I will never forget them or him. Alex showed me what real love and grief are.
CF would come to impact my families life again. When my nephew Declan was born, he was found to have two disease causing mutations. To this day, he has not had any symptoms. While we don’t know what will happen as he gets older, I am so grateful my sister has an amazing community around her.
The CF Foundation works tirelessly to provide families with treatments, medication, and support, as well as funding research. Please consider donating to this cause that is so near to my heart.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.