Declan was born on Feb 23 2014 and has been anything but ordinary from the start. He was almost a month early, then decided to do a brief stint in the NICU. When we finally brought him home we got the phone call about his DeltaF508 mutation. After months of different tests and doctors visits they found that he also has a P67l mutation. While he has two disease causing mutations, he also has no symptoms to date. We are in the "gray" area of the CF world, and have been diagnosed with CRMS. So while we are unsure of what will happen as he gets older we are grateful to be apart of this community because whatever bumps we see down the road we know the CF foundation works tirelessly to help families with medications and treatments, as well as fund research.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.