Kurt And Aimie Best

We are a Syracuse extension of the (Westchester County based-) Cousins for a CURE team to support Brianna - Aimie's "niece" and one of Madeline & Emily's closest friends.

Madeline & Brianna are about 15 months apart and have always loved being together. Now that we live four hours away, we are only able to see them once or twice a year. When an illness as simple as a cold or a lingering cough causes a get-together to be cancelled, they are heartbroken.

Brianna's parents posted the following on their walk page this year:

"I will let you in on a little secret.  Attending the walk every year is incredibly hard for me.  I find myself needing to remember to breathe so that the tears don't start flowing.

In our day to day life CF does not define us. We don't let it define our strong, courageous, brave and opinionated daughter either. She does her therapy, takes her pills every time she eats, exercises regularly to maintain her lung health, increases her therapy when she is sick and avoids germs whenever possible.  She goes to her gastroenterologist, pulmonologist, pediatrician, ophthalmologist and gets her bloodwork and chest x-rays done like a champ.  

Then... she helps shelve books in the school library, volunteers for the daycare and elder care clubs at school, sings with the chorus and the Webster singers, dances both contemporary and ballet and is this year learning the clarinet.  She is an amazing big sister, fabulous daughter and cherished friend.

In our daily life Brianna is a normal kid with a few extra chores... and she is doing GREAT!

So it is easy to forget that in 2019 the average life expectancy of a person with CF is 46.  It is easy to forget... until I go to the walk and remember that every day we are fighting to raise that number.

It is with your donations, your support, your prayers and your love that this will be possible.  

If you can join us at the walk it would mean the world to us.

If you can donate to help make CF stand for Cure Found we would be immensely grateful.

If you can keep us in your prayers we would be so very thankful.

From the bottom of our hearts- thank you.

Erica and Brian Rice"

Thanks to donors like you, researchers have been able to develop medications that allow Brianna to reduce her daily therapy sessions to once a day which gives her an extra 3.5 hours a week to be a kid! Your donations make this possible! Who knows what your donations can make possible tomorrow...

Participating in this walk is one way for us to support Brianna and her family as they strive to make CF stand for Cure Found! Please consider a donation, EVERY SINGLE DOLLAR COUNTS!

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.

Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!

Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.

Please support me!

Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.