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We are a Syracuse extension of the (Westchester County based-) Cousins for a CURE team to support Brianna - Aimie's "niece" and one of Madeline & Emily's closest friends.
Brianna's parents posted the following this year:
"The last time I checked, the life expectancy of someone with cystic fibrosis was 46. Today the life expectancy is 53. Since I checked the stats 1 year ago we have added 7 years to this number. And yet... as I approach my own 40th birthday in a few weeks.. 53 just doesn't seem like enough time.
Brianna is so very lucky to be eligible for life saving medication that treats the underlying cause of the life threatening symptoms of cf. There are still, unfortunately, some cf patients whose genetic mutation makes them ineligible for these medications. They are still waiting for their miracle medication. And we are all still waiting for a cure. So we fight. We stand together and we fight until all people with cystic fibrosis have a chance to live the life they deserve to live and reach the goals they have set for themselves.
I can vividly remember writing Brianna's walk letter 6 years ago before she went off to preschool. I was so full of fear and uncertainty. I sit here, what seems like a few weeks later, on the precipice of another huge transition... middle school. Next year Brianna's independence and responsibility for taking care of herself will truly be put to the test- and my Mama heart hopes and prays that we have prepared her enough.
If you can donate to help make CF stand for Cure Found we would be immensely grateful.
If you can keep us in your prayers we would be so very thankful.
From the bottom of our hearts- thank you.
Erica and Brian Rice"
Thanks to donors like you, researchers have been able to develop medications that allow Brianna to reduce her daily therapy sessions to once a day which gives her an extra 3.5 hours a week to be a kid! Your donations make this possible! Who knows what your donations can make possible tomorrow...
Participating in this walk is one way for us to support Brianna and her family as they strive to make CF stand for Cure Found! Please consider a donation, EVERY SINGLE DOLLAR COUNTS!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.