We are a Syracuse extension of the (Westchester County based-) Cousins for a CURE team to support Brianna - Aimie's "niece" and one of Madeline & Emily's closest friends.
Thanks to donors like you, researchers have been able to develop medications that allow Brianna to reduce her daily therapy sessions to once a day which gives her an extra 3.5 hours a week to be a kid! Your donations make this possible! Who knows what your donations can make possible tomorrow...
Brianna's mom, Erica posted the following on her walk page this year:
"I will let you in on a little secret. Attending the walk every year is incredibly hard for me. I find myself needing to remember to breathe so that the tears don't start flowing.
In our day to day life CF does not define us. We don't let it define our strong, courageous, brave and opinionated daughter either. She does her therapy, takes her pills every time she eats, exercises regularly to maintain her lung health, increases her therapy when she is sick and avoids germs whenever possible. She goes to her gastroenterologist, pulmonologist, pediatrician, ophthalmologist and gets her bloodwork and chest x-rays done like a champ.
Then... she helps shelve books in the school library, volunteers for the daycare and elder care clubs at school, sings with the chorus and the Webster singers, dances both contemporary and ballet and is this year learning the clarinet. She is an amazing big sister, fabulous daughter and cherished friend.
In our daily life Brianna is a normal kid with a few extra chores... and she is doing GREAT!
So it is easy to forget that in 2019 the average life expectancy of a person with CF is 46. It is easy to forget... until I go to the walk and remember that every day we are fighting to raise that number.
It is with your donations, your support, your prayers and your love that this will be possible.
If you can join us at the walk it would mean the world to us.
If you can donate to help make CF stand for Cure Found we would be immensely grateful.
If you can keep us in your prayers we would be so very thankful.
From the bottom of our hearts- thank you.
Erica and Brian Rice"
Please consider joining our team and/or making a donation.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.