My adorable niece Kyrie was born with a genetic condition called Cystic Fibrosis. It affects the lungs & digestive system and although there is no cure, there are many treatments to help those with CF live semi-normal lives. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. Unfortunately, Kyrie happens to be one of those who has rare mutations.
If you’re looking to donate to a good cause, please consider donating to the Cystic Fibrosis Foundation! I am participating in The Great Strides Walk on May 21, which just so happens to be days after her 2nd birthday. Your donation of any amount will be considered a valuable gift for Kyrie and our family!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. We are at a pivotal moment in the history of cystic fibrosis and your support matters. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found.
Please support Kyrie!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.