February 24, 1975 was a life-changing day for our family. John finally had a definitive diagnosis – Cystic Fibrosis. He was 13 years old. Mom & Dad knew absolutely nothing about this disease & were told he would probably not live past 18! Can you imagine hearing doctors tell you your child had maybe 5 years to live?! CF is a family disease & for 21 years, it ruled our household. So until CF is eradicated from this earth, I will continue to beg & plead for your help.
The donation received from friends like you make life-changing differences for CFers & their families. The average life expectancy today is 40+. Many are living way beyond. Because of you, much progress has been made in the fight against CF. There are now THREE drugs that treat the underlying cause of the disease in MORE THAN HALF of all those with CF!!! AND there are clinical trials underway for therapies that could help bring life-transforming treatments to more than 90% of CFers as soon as 2020!!! How exciting is this!!! I hope you will take great pride in being part of these amazing achievements & donate once again to my GREAT STRIDES campaign!
Most of you who receive my letter never had the privilege of knowing John. Many of you were blessed to call him friend. He was definitely a force to be reckoned with! What I’d give for him to know Rusty & PresleyAnn - The 3 of them would be the best of buddies! He loved Angela like no other & would be so proud of the young woman she has become. He antagonized her like crazy! I can only imagine the phenomenal relationship they would have had John lived. She was only 9 when he died.
John did not have the ending we’d so prayed for. His fight with CF ended August, 29, 1996 – almost 23 years ago – 16 days after a double-lung transplant & multiple surgeries. He was 34 years old. Once again, our lives were changed forever.
We have come a long way, but we won’t be satisfied until there is a cure for every person with CF! I hope I can count on you to help make CF stand for CURE FOUND! What a day it will be when all those with CF can say, “I USED TO HAVE CF!!!” Thank YOU for making a difference.
Until it’s a done deal,
Page, Angela & PresleyAnn (John, Jim & Katie too!)
Gather up all your kiddos & join our team, BULLER BUDDIES, for a stride through the Zoo SATURDAY, MAY 18TH! Enjoy a fun after-party with music, food & team photos. There are also great prizes for all who fund raise! (See website for more details.) We have Buller Buddies t-shirts too! EVERY FUNDRAISER WILL RECEIVE ALL DAY ACCESS TO THE ZOO!!!
CHECK IN – 7:00 A.M. WALK BEGINS @ 8:00 A.M. CELEBRATION PARTY AFTER
Please click on the link & join our BULLER BUDDIES’ team and/or make a tax deductible donation. Every penny makes a difference. $5, $10, whatever you can to help put CF in the ground forever! http://fightcf.cff.org/site/TR/GreatStrides/147_Texas_Gulf_Coast_Houston?px=1614401&pg=personal&fr_id=7474
**** PS. 90 cents of every dollar raised goes into vital Cystic Fibrosis programs! ****
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.