Precious Baby Phoenix was diagnosed with Cystic Fibrosis only 4 short weeks after her birth on December 28th, 2018. From all appearances, she is a perfectly healthy, beautiful baby girl. But inside her little body it is a struggle to just breathe. Cystic Fibrosis (CF) is a rare, genetic disease that progressively causes severe damage to her lungs and digestive system. While there is currently no cure, Phoenix has hope!!! Thanks to the Cystic Fibrosis Foundation’s innovative research and drug development, there are new life-extending medicines and therapies that there never were before! Due to fundraisers like Great Strides, the CF Foundation is not only able to pursue further groundbreaking research, but also to continue providing individualized treatment, specialized, quality care, and ongoing support for all that have been effected by this disease.
This year, our team is participating in the Houston Great Strides Walk. And we need your help to meet our fundraising goal!! Please consider making a, 100% tax deductible donation to our team. Your generous gift will be used to support the CF Foundation and its mission to find a cure for our dear sweet little Phoenix and the many others effected by this devastating disease.! Any amount you can donate is greatly appreciated! Your support matters!
To learn more about CF and the CF Foundation, visit www.cff.org. Want to lace up and walk too? We welcome you join the team, as we stride our way to a cure!
Thank you for your support and truly being Friends of Phoenix!!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.