Precious Baby Phoenix was diagnosed with Cystic Fibrosis only 4 short weeks after her birth on December 28th, 2018. From all appearances, she is a perfectly healthy, beautiful baby girl. But inside her little body it is a struggle to just breathe. Cystic Fibrosis (CF) is a rare, genetic disease that progressively causes severe damage to her lungs and digestive system. While there is currently no cure, Phoenix has hope!!! Thanks to the Cystic Fibrosis Foundation’s innovative research and drug development, there are new life-extending medicines and therapies that there never were before! Due to fundraisers like Great Strides, the CF Foundation is not only able to pursue further groundbreaking research, but also to continue providing individualized treatment, specialized, quality care, and ongoing support for all that have been effected by this disease.
This year, our team is participating in the Houston Great Strides Walk. And we need your help to meet our fundraising goal!! Please consider making a, 100% tax deductible donation to our team. Your generous gift will be used to support the CF Foundation and its mission to find a cure for our dear sweet little Phoenix and the many others effected by this devastating disease.! Any amount you can donate is greatly appreciated! Your support matters!
To learn more about CF and the CF Foundation, visit www.cff.org. Want to lace up and walk too? We welcome you join the team, as we stride our way to a cure!
Thank you for your support and truly being Friends of Phoenix!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.