From the looks of it, Sarah is just a normal 8 year old girl. She likes to laugh, play and have fun. She is in third grade this year and loves to go to Girl Scouts and hang out with her friends. Underneath all of that, a disease called Cystic Fibrosis (CF) that wreaks havoc on her little body.
She was born with CF and lived with the symptoms for almost 7 months before she was diagnosed with it on February 8, 2012. The diagnosis came after months of extensive testing and multiple doctors deliberating over her case.
Cystic Fibrosis is a very serious, life threatening and debilitating disease that causes severe damage to the lungs and digestive system. It affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. But in cystic fibrosis, a defective gene causes the secretions to become thick and sticky. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the lungs and pancreas.
Since being diagnosed, her life has changed drastically. She has a daily regimen of chest physiotherapy, which means she uses a vest that shakes her whole body for up to 30 minutes to break up mucus in her lungs twice a day, and nebulizer treatments that last between 25 minutes- 1.5 hours long that she also do twice a day. When she gets sick with a cold or other respiratory illness she has to do them a lot more than that. Also, before she eats anything she has to take enzyme pills that help her body to absorb the nutrients from her food since CF doesn't allow her pancreas to work normally.
Sarah most wants to be just like everyone else and not have to spend hrs doing treatments and weeks in the hosptial. You can help by donating to help find her a cure.
Please support her!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!There are approximately 30,000 Americans living with cystic fibrosis and Sarah is one of them. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.