My Great Strides Story
Dear Friends,
As you may know, I am serving my third term as Chairman of the Board of the Texas Gulf Chapter of the Cystic Fibrosis Foundation. My niece, Paige Nettles Montgomery has cystic fibrosis, a brutal disease that has no cure.
When Paige was diagnosed, CF patients had access to drugs which only treated the symptoms of the disease. Today, thanks to the visionary CF Foundation, and generous support, there are now four drugs on the market that treat the basic defect of CF. The medical advancements funded by the CF Foundation have enabled CF patients to live many of their dreams. However, due to her specific mutations, Paige, has been unable to benefit from the existing therapies.
Last year was a tough year for us as Paige spent over 65 nights in the hospital leaving her constantly physically depleted and weak, emotionally drained, and unfortunately developing a stronger resistance to antibiotics with each stay. I am committed to helping raise funds to support the journey to a cure at the cellular level which will help all patients with CF, not just Paige. What’s particularly exciting is the CF Foundation’s cutting-edge research taking place for CF in genetic therapies – the key to unlocking the cure. The work ahead to change the future of every person with CF is the most innovative and complicated scientific exploration the Foundation has ever pursued and requires substantial investment.
I hope you will join us on our journey to put an end to cystic fibrosis by donating to our Great Strides walk which is May 18 in whatever amount you choose. Every dollar is greatly appreciated, fully tax deductible and will help us in this fight to cure cystic fibrosis.
Please join us by donating $25, $50, $100, or whatever amount you feel comfortable with. You can Click Here To Donate Now. I assure you any contribution will be wisely invested in our fight to make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.