Stephanie Stanley

My Great Strides Story

I was diagnosed with CF after my newborn screening came back abnormal, I have recently really seen the impacts and reality of CF with my long hospital stay. My hope is to live a long healthy life seeing the cure to CF found. I am currently ineligible for the medications that are available to counter act and manage it but praying there is another one found to help my mutations. 

There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.