Isamar Rivas

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

I was told when I was 6 months pregnant that there was a possibility of a 25% chance my baby was born with a condition I had never heard about in my life. One that has no cure and progresses as the person grows. As a mom, that broke my heart. Seeing my child having respiratory therapy twice a day, breaks my heart. But I’ve received comfort from my husband, parents, siblings, church family, and most importantly, God.

You ask why I stride?
I stride for a future where there is a cure that can enable people with this diagnosis to have a longer and healthier life. I stride to bring awareness, knowledge, and understanding.
I stride so that no other parent’s heart breaks when the words “there is no cure” are told to them. I stride so that my son, my miracle, can have a better chance of life.

PLEASE HELP US BY DONATING TO MY SONS FOUNDATION IN THE LINK BELOW. ⬇

$1 can make a difference
Your donations help with treatments, follow ups, research.



You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.