In May of 2018, Scott and I found out that we were pregnant and we were over the moon. We never expected to be lucky enough to become parents at this point in our lives. When Phoenix Jean Clifford was born on December 28, 2018 we were overcome with absolute joy, love, and adoration for the beautiful angel that God blessed us with! As a mom, I felt that something just wasn't quite right with her as she was struggling with losing weight and seemed to have quite a bit of trouble with her little tummy. The doctors assured me that she was fine and we took her home. About one month later, we received a concerned phone call from her pediatrician regarding her newborn screening. She had tested positive for cystic fibrosis. We went in for confirmation tests and received the results that day. We were terrified. Cystic fibrosis is scary. The first thing you think of is "my baby is going to be in pain and may need new lungs one day. This isn't fair". Here's the thing, when you look at Nixi, you'd never guess she was sick. We work so hard to keep her free from infection and we make sure to keep up with her medicine. This is a huge daily task. The Ctstic Fibrosis Foundation has been a lifesaver for us. They have provided endless resources and support to make this scary journey as easy for us and Phoenix as possible. The researchers h that they do is imperative to finding a cure. One day there may be a therapy designed to cure my baby of this horrible disorder. BUT this can only happen with YOUR support. I implore you to donate any amount that you can. We walk on May 18th for Nixi and all of the other people who live with cystic fibrosis every single day.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!