Last week I watched Five Feet Apart, a movie about 2 teenagers living with Cystic Fibrosis. All I could think of as I watched was WHY COULDN’T JOHN HAVE LIVED? WHY COULDN’T THE NEW LUNGS GIVE HIM MORE TIME WITH US? WHY COULDN’T HE BE HERE FOR ME? WHY COULDN’T ANGELA HAVE KNOWN HIM LONGER THAN HER 9 SHORT YEARS? WHY COULDN’T HE HAVE MET RUSTY & PRESLEYANN? WHY ISN’T HE HERE WORKING THE RANCH WITH RUSTY & ANGELA? WHY COULDN’T HE BE HERE TO TRY THE NEW MEDS? WHY DID HE HAVE TO DIE? WHY? WHY? WHY?
For the last 5 or 6 years of John’s life, he left an impact on anyone he came across. He was a changed man & he wasn’t afraid to tell anyone. I’ve had some of John’s Bible Studies & journals for years but never had the courage to read them. Until recently. Throughout his writings, he prayed for his healing. He totally trusted the Lord to heal him. He KNEW he would be healed. He knew in his heart, one day he would be free from CF. He knew he would be healed whether it be on earth with the transplant or through death & going to Heaven. And he was so at peace with whatever the Lord’s will for his life was.
May 28, 1993 John wrote: “I’ve learned so much & the joy I feel cannot be properly expressed. I’m excited about where You’ll lead me next. Father, I wait expectantly for the healing of CF & I thank you & pray that my heart & mind will glorify You always for my life. Thanks for blessing me in so many ways, my parents, sister & whole family. My Christian up-bringing gave me so many advantages. I love You Lord & may my love grow stronger each day. Amen.”
August 13, 1996 John got new lungs. 16 days later he met Jesus in Heaven. Never in all these years have I questioned God like I did while I was watching this movie. Never have I wished for him to be here as much as I did that day. The Lord must have needed him more than any of us & one day I will have all my questions answered. In the meantime, please help me give all the other CFers more time here on earth with their family & friends.
Thank you to everyone who takes time to read my letter. Because of your donations, there is a brand new drug just approved by the FDA called Trikafta. “With the approval of Trikafta, more than 90% of people with CF could eventually have a highly effective therapy for the underlying cause of their disease.” This drug is a life changer for so many! How amazingly awesome is that! I will remain committed to raising money until everyone with CF is able to live a long & healthy life. I know it’s a rough time right now & if you can’t make a donation, please pray for all the CFers & their families. However the Lord leads you, please cover them in prayers. Thank you for helping to add tomorrows & helping to ultimately find a cure for Cystic Fibrosis.
With heartfelt gratitude & until CF stands for CURE FOUND!
Page & Angela (Jim, Katie & John)