Carl Snider

Hayley, and now Linda’s grandnephew Colton, are two of the approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal? 

We will be participating in Great Strides for the 24th year on May 18th. For those who have supported us in the past, a huge thanks.  Your support by donating or joining our team and raising funds and attending the pre-opening night of the Houston Zoo Lights would be greatly appreciated.

Hayley has benefitted greatly from Trikafta which was developed by the CFF.  While CF has taken her pancreas, left her lungs scarred and colonized with MRSA, with Trikafta her lungs are now clear enough to be playing soccer, and best of all per her, able to laugh without having a coughing fit.  

While Hayley and Colton will benefit from Trikafta, not all those with CF do.  About 10% either can’t tolerate or have genetic variations that don’t benefit from modulators like Trikafta.  

Real progress has been made but there is much more to come.  Linda and I had the privilege of visiting the CF labs outside of Boston this year.  The smart and dedication of the people in that lab were incredible.  RNA therapies that would benefit all including that last ten percent are in progress.  

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!