Lena's Legion

Lena was diagnosed with Cystic Fibrosis at 3 weeks old. She has pancreatic insufficiency and needs to take digestive enzymes before everything she eats. She does chest percussive drainage 2x every day with inhaled meds to keep her lungs clear of mucus and infections. She started taking Trikafta in 2023 and this drug should significantly slow the progression of her CF. This new drug is the result of fundraising efforts like this! It isn't a cure and can have side effects, but it gives us so much hope for her future. 

Join our team and help us get one step closer to a cure for cystic fibrosis - a rare, genetic, life-shortening disease that makes it difficult to breathe.

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.

We walk in Great Strides for them.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF. It takes place at the Houston Zoo on May 18 this year. 

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!