Lily Toole

My Great Strides Story

Our son Colt was diagnosed with cystic fibrosis when he was just 3 weeks old. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They face the sobering prospect of a shortened lifespan.

While Colt is a happy, healthy little boy, he endures daily treatments to keep his lungs clear of infection and takes pills with each meal to help him digest his food. We are now swallowing whole pills which has been a complete game changer during meal time! Colt received his vest in December and has gotten into a routine with his nebulizer and vest treatments each morning. We try to keep it fun by letting him pick out our morning activity each day during his vest time. 

Later this year, Colt should be eligible for the relatively new but effective therapeutic drug combination known as “Trikafta,” which was developed with support from the Cystic Fibrosis Foundation and recently approved for certain patients aged 2-6. While there have been some incredible advancements made in the treatment of CF, he will live with the disease until a cure is found. I walk for Colt and the other 40,000 people suffering from CF. 

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.