Ali Toole

To my friends and family,

As most of you know, my nephew Colt was diagnosed with cystic fibrosis last year when he was just 3 weeks old. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They face the sobering prospect of a shortened lifespan.

While Colt is a happy, healthy little boy, he endures daily treatments to keep his lungs clear of infection and takes over 30 pills a day to help him digest his food. While he still doesn’t like his treatments, he takes his enzymes with applesauce like a champ.

Next year, Colt should be eligible for the relatively new but effective therapeutic drug combination known as “Trikafta,” which was developed with support from the Cystic Fibrosis Foundation and recently approved for certain patients aged 2-6. While there have been some incredible advancements made in the treatment of CF, he will live with the disease until a cure is found.

We have created a team to participate at the 2023 Houston Great Strides event which benefits the Cystic Fibrosis Foundation, which has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF.

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!