Dear friends & family,
I miss him. I really, really miss him. In so many ways it seems like yesterday John got the call for his new lungs. Although he did not have the ending we’d so prayed for, we know God had bigger plans for him & we have great peace knowing he is in Heaven with Jesus. No more hours of breathing treatments or clapping (chest pt). No more taking dozens & dozens of pills throughout each day. No more hospital visits. He has a brand new, healthy body. And he can breathe. But for 28 years I have missed my brother something fierce.
When John was diagnosed with Cystic Fibrosis in 1975, Mom & Dad were told he might live to be 18! Because of all the advances in therapies, that number is now 56! This number will only climb higher & higher as new therapies continue to become available. The quality of life for so many living with CF has improved with the new, highly effective therapies. However; “Genetic therapies, the key to curing CF, are more complicated than anything we have ever pursued & will require a substantial investment. That’s why your gifts are so important to sustaining our mission.”
I humbly thank you all for the incredible encouragement & support you’ve given me over the past 28 years. I can assure you, I do not take it lightly. I hope you will consider making a gift in honor of John’s memory so that someday very soon ALL people with CF can live a super spectacular & long life!
It is with much gratitude I thank you in advance for helping give these folks the opportunity to breathe. And to thrive. Your generosity today will make an incredible impact on their lives tomorrow. Together, we can make CF stand for CURE FOUND!
On behalf of my family & all those living with Cystic Fibrosis, I thank you for taking time to read my letter. May our Great Big God bless you & yours as He has most definitely blessed me & mine!
To HIM be ALL the Glory!
Page, Angela, PresleyAnn & Katie (John, Katie & Jim too!)
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.