We will not be able to attend in person this year, but that is because we will be attending graduation and finally going on a graduation cruise. But that is all the more reason we are registering for the walk and raising money for this foundation, because without it's great research and resources, we weren't even sure we would be here today . Every year we have walked and hiked to celebrate Megan. Our beautiful daughter is now 22 years old. She will be graduating from Emerson College on May 12th and will have an exciting life to look forward to - largely due to the research and treatments funded by CFF and your donations over the years.
We have participated in Great Strides and various other fundraising efforts since 2002 after Megan was diagnosed with this devastating genetic disease at birth and Megan has been fighting ever since. Megan has never let her disease limit her. She still does at least 2 hours of breathing treatments a day, takes several pills a day and manages nutritional needs with a large diet.
Fast forward from that first walk 22 years ago and you can see CF treatments are completely different and improved. Almost four years ago, Megan started the long awaited drug, Trikafta, the latest version of a gene modifying medication (MRNA technology, for those interested...not unlike the Covid Vaccines). If you follow us on social media, we announced the day she started- her lungs immediately cleared out. She said she didn't even know she couldn't breathe well. Since then, Megan has gained healthy weight on her own and improved her lung function. Four years ago she was finally able to have her feeding tube removed, something she has had since she was a toddler. She still has to continue some of her maintenance care and medications, but it is likely over time even that will change. We cannot believe how close we are to a cure. But it is NOT a cure, there is NO remission, so we continue to fight. In addition, there are many others with different variations of CF that this medication does not work for - people who are working and fighting right alongside of us. We owe it to these families to make sure there are treatments for everyone and eventually a cure for all!!!!
We have committed to raising funds every year for this cause so near to our hearts and are asking for your help again in raising support for research to cure this deadly disease. We hope you will join Team Meggers and help raise funds. You can join right here and start raising today. It's easy, it's fun and it will continue to save Megan's life and give her hope for a cure one day. There are treatments and drug therapies that have changed the outcome of this once deadly disease. Our efforts will make Megan's life long and full. Please consider making a donation to the Cystic Fibrosis Foundation or joining the team. Making a donation on-line is easy and secure! Just click the "Donate to me" button at the bottom of this page.
Together, we can make a difference in the lives of those with CF like Megan. Last year we raised over $5000.00. We also started a new foundation with similar fundraising efforts and we are able to kick off Team Meggers with a $1,000.00 donation. Thank you for supporting the mission of the CF Foundation and Great Strides! But more importantly, thank you for praying and being with us as we have watched Megan grow and become a young woman. Help us find a cure soon and be part of Team Meggers today! Thank you.
