Ethan's Entourage

May is Cystic Fibrosis awareness month. We stride and raise money and awareness in hopes of one day finding a cure for CF. This is Ethan’s story…

On August 17, 2017 our lives drastically changed forever. It was officially the day Ethan was diagnosed with having Cystic Fibrosis. After days of worrying about the inevitable, it was confirmed. A true diagnosis. Reality set in… worry, despair, anger, above all else acknowledging that Ethan was going to have a very tough life. 

On August 3rd 2017, Ethan was born. He spent the entire night throwing up. He had a blockage in his stomach. At the time we didn’t know what it was. Whereas now, we know it as meconium illeus. Ethan was rushed to Nemours DuPont and underwent emergency abdominal surgery at just 2 days old. Little did we know Ethan would be in and out of the hospital for the next 6 months undergoing an additional 5 surgeries. To ultimately having a hospital stay at CHOP for an entire 365 days. A WHOLE year! 

On February 6, 2019 Ethan came home and has not been back to the hospital since. Except for when he has to visit with the Pulmonary and GI doctors. Along with Ethan came his g-tube, medications, pulmonary clearance treatments, fights with insurance companies, and last but not least… his enzymes. It is crazy what an entire year can do. Ethan can FINALLY swallow his enzymes. He also started the new CF medication Trikafta and he has been gaining weight. We are super proud! 

This will be our 6th year doing great strides. We are asking for donations and awareness to be spread. Currently there is NO cure. Although a lot of progress has been made, it’d be amazing to have a CURE once and for all. 

Thank you all family and friends over the years for your countless donations and endless prayers. Believe me it does not go unnoticed. 

We will not stop until CF stands for CURE FOUND.