Margo Brackeen is the first person to tell you she doesn't need your help. She's got more strength and grit then anyone around her, and unfortunately, she knows it.
Margo is also the first person that will tell you she has cystic fibrosis. She owns it. She loves to make people aware of why she takes pills, why she gets "beat, beats," and why she has special CF powers (like a better sense of smell, though this has not been verified by anyone except Margo). It fits her personality, which can be described as very outgoing, opinionated, and for lack of a better word, loud.
As her parents, we're proud of Margo's independence. We're hopeful for her future, but we are not content with hope. We want a cure. It's what drives our team, Margo On The Move, to continue raising funds for the Cystic Fibrosis Foundation. We're determined to help alleviate the stress and pain of the 70,000 people (and their families) worldwide battling CF.
It's the goal of our team to disrupt Margo's daily routine by finding a cure for CF. We want Margo to have to avoid taking 9,000+ pills a year, losing over 14,000 minutes a year to chest physical therapy, and for her parents to stop reminding her to cough and spit.
We appreciate the support we've received over the years and hope you can continue to support us.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.