We are finally back in person!!! After the pandemic has rendered our walk virtual two years in a row, we are celebrating back at Peace Valley this year on 5/21/22. Every year we have walked and hiked to celebrate Megan. Our beautiful daughter is now 20 years old, has completed her second year of college and has just returned from a semester abroad in Europe amidst continuing pandemic restrictions. When we started participating in this walk over 20 years ago, we could not always see a time where Megan and CF could handle a pandemic, college, trips abroad - life in general. It was a very rough beginning, but there was always hope for a better life ahead.
We have walked since 2002 after Megan was diagnosed with this devastating genetic disease at birth and Megan has been fighting ever since. Megan has never let her disease limit her. She still does at least 2 hours of breathing treatments a day, takes several pills a day and manages nutritional needs with a large diet. Megan continues to study at Emerson College for theater and has been managing all of her medical treatments and supplies, insurance and any accommodations mostly herself – at school and even abroad.
Fast forward from that first walk 20 years ago and you can see CF treatments are completely different and improved. Almost three years ago, Megan started the long awaited drug, Trikafta, the latest version of a gene modifying medication (MRNA technology, for those interested...not unlike the Covid Vaccines). If you follow us on social media, we announced the day she started- her lungs immediately cleared out. She said she didn't even know she couldn't breathe well. Since then, Megan has gained healthy weight on her own and improved her lung function. Two years ago she was finally able to have her feeding tube removed, something she has had since she was a toddler. She still has to continue almost all of her maintenance care and medications, but we are hopeful over time even that will change. We cannot believe how close we are to a cure. But it is NOT a cure, there is NO remission, so we continue to fight. In addition, there are many others with CF that this medication does not work for - people who are working and fighting right alongside of us. We owe it to these families to make sure there are treatments for everyone and eventually a cure for all!!!!
We have committed to raising funds every year for this cause so near to our hearts and are asking for your help again in raising support for research to cure this deadly disease. We are so excited to be back in person and hope you can join Team Meggers on walk day and help raise funds. You can join right here and start raising today. It's easy, it's fun and it will help save Megan's life and give her hope for a cure one day. There are treatments and drug therapies that have changed the outcome of this once deadly disease. Our efforts will make Megan's life long and full. If you can't join us would you please consider making a donation to the Cystic Fibrosis Foundation? Making a donation on-line is easy and secure! Just click the "Donate to me" button at the bottom of this page.
Together, we can make a difference in the lives of those with CF like Megan. Last year we raised over $7000.00 virtually. We hope to surpass that in 2022 and celebrate all of you who have supported at our first in person walk since 2019. Thank you for supporting the mission of the CF Foundation and Great Strides! But more importantly, thank you for praying and being with us as we watch Megan grow. Help us find a cure soon and be part of Team Meggers today! Thank you.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.