Every year I update my Great Strides page to add more detail to the story of our battle with cystic fibrosis.
I add up the time Margo spends doing CPT (over 100,000 minutes since she was born) or the amount of pills she consumes (well over 30,000 in her lifetime). It is a sobering reminder of what is required to hold back CF.
In the past year I have met so many new people in the CF community that have battled through much more sobering events: hospitalizations; transplants; and death. These are on every parent's mind, no matter how good things are.
But I have also met incredible people who have overcome the worst of circumstances to fight for their own health or the health of a loved one, and to get the scientific community to find a cure. These stories are gripping.
These incredible people built the CF Foundation and they created an organization that will go to the mat for those with CF. It is why median survival rates continue to improve. It is why therapies for treating CF and underlying conditions continue to roll out.
The CF community has taught our family so much. Personally, I understand how valuable each day is with our loved ones so much better than I did before I was part of the community. I am lucky to have a lifelong purpose: walk today to add tomorrows for those living with CF. That's pretty simple.
Please consider making a donation to my Great Strides fundraising campaign. Please don't sit on the sidelines. We are on the cusp of something amazing.
If you are interested in joining the team, go to http://fightcf.cff.org/goto/margoonthemove