For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me!
Our Story
Cy was born on 6/5/18. We learned that he has cystic fibrosis when he was 6 days old from the newborn screen. CF is a progressive genetic disease that affects the whole body, but the major concerns are respiratory infections and digestive problems. Cy is a fighter though! Even though it's often a struggle getting a 3 year old to cooperate for 1 hour breathing treatments twice a day, we are so proud of him:
At the age of 2, he learned how to swallow 6 enzyme pills in one gulp.
He holds his own nebulizer and knows how to start and pause his vest machine during his breathing treatments.
He learned how to take deep breaths from his inhaler.
He knows how to wrap his finger and all the right buttons to push to check his oxygen with the respiratory therapist.
He bravely gets his blood drawn for labs every 3 months
He is a self taught ninja in training and makes the best fighting sound effects
He will try just about any food because he knows he needs extra fat and protein
He is the most loving big brother to his baby sister
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!
Help us say CYonara to CF!
Did you know? "65 roses" is a symbol for cystic fibrosis. A young boy overheard his mother talking on the phone about cystic fibrosis. He said "mom, I know what you are raising money for... 65 roses." Ironically, Cy's birthdate is 6/5.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: