The Walk has been cancelled this year due to the Covid virus. For once everyone has to do what a person with cystic fibrosis has to do at a time when they are sick! 6 feet apart, wear a mask, wash hands alot ect. We are all living a cfers LIFE! So with this being said this is extremely hard on someone who lungs are compromised and a donation to help find a cure is even more important now! As always 90 cents of every dollar goes to finding a cure.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the research for a cure, but people with CF are still cut far too short. There still is no cure for this devastating disease. Last year our team raised over $5,000.00 which give us a sense of purpose and how we can help Michael and Julie beat this silent disease. An update: This year Julie tried the bowling team and really seemed to like it. She has all honors classes and has continued to keep good grades, which is awesome in my mom book. She has not cultured anything but normal staph. Michael's chest CT shows that his lungs look like a normal teen! He had his feeding tube removed almost 2 summers ago and is holding his own with his weight. He is also fighting acne conglobata still, which is rare but I blame CF. Michael has started Ocean Community College and plans on transferring to Stockton in the near future.
But on a wonderful note, Thanks to all the research and medical advances from Cystic Fibrosis Foundation Michael and Julie are on the new CF drug that is geared to their gene mutation Delta 508. This should help with weight gain, lung function and give them more years to live. They have started this new drug and their ige levels have started to drop which is good news! I just wanted to thank you personally and let you know that your donation does not just pay a big organization with a fancy name but research is being done and there has been medical advances since Julie and Michael have been diagnosed. The proof is neither one has had an hospital stay in 10 years!
Please support me!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.