Hello dear supporters of Team Bailey! What a year it's been and I can't wait to catch you up.
Bailey is A HIGH SCHOOL STUDENT!!! How did this happen, that my little baby is now going into her freshman year. She will be 16 in Octoer, and has really come into her own. She knows what she likes, who she likes and what she wants to do with her time. She has morphed from a girl into a confident young lady and it humbles me to be part of the ride. From the time she was a toddler, her empathy and strength has shown brightly, and that is still true today. I am so thankful that God has equipped her to deal with not just her CF, but this crazy life!
I am happy to report that Bailey has been feeling pretty healthy, but admittedly her sinuses have been giving her problems. This is where her disease has really manifested and at times, it breaks my heart watching her manage her health. She has maintainted twice daily vest treatments where she sits to a machine that shakes her lungs while she nebulizes 2 different medicines. Once in awhile she voices how she wishes she were a "normal" kid and didn't have CF. I can only pray - and do fundraisers like this - in the hope that one day her wish comes true.
On April 28, 2019, 10:00am at Linvilla Orchards, Team Bailey is walking for the 16th year. We started when Bailey was 7 months old and I remember the emotions like it was yesterday. As her mother, I feel the same desperation I did when she was a baby. I am just more used to it now. Please consider a donation to the Cystic Fibrosis Foundation in Bailey's honor, in honor of the thousands who fight every day to simply breathe, or in the memory of those who have already passed. Your gift is tax deductible and I pray you are blessed mightily in return.
Thank you for loving my girl, and for supporting our family. We would love to have you with us to walk - it is a lovely farm, look it up. Bailey is proud to fight for CF and she'd be overjoyed to share in this event with you. Or, of course, if you'd like to fundraise but can't walk, that is wonderful too! Reach out with any questions.
Much love and gratitude to you all, always!