My Great Strides Story
Our son Elliot was born 12/1/2022.
Elliot was diagnosed with cystic fibrosis at just 9 days old. Since then, it’s been a learning curve for us full of chest PT (manual airway clearance), nebulizer treatments, hand washing, sanitizing the house, steering clear of illness, weight gain, doctors appointments, and enzymes… lots and lots of pancreatic enzymes.
We are so thankful for the advancements made in the treatment of cystic fibrosis, all which will help Elliot live a long, mostly healthy life with CF in hopes of a cure someday.
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.