Leana Goodwin

My cf story began 29 years ago , when my little sister Mary was diagnosed with CF. Mary had trouble gaining weight as an infant , was constantly going through diapers , and my mom knew something was wrong. After 6 months of no answers, they completed tests and diagnosed  Mary with CF. My mom was taken back , and even though it’s a genetic disease she had never experienced any family that she knew of with it. Mary was sick a lot throughout our childhood . I was there through it all . I went to all of her appointments , sat with her through testing , got to stay overnight with her at the hospital thanks to some great nurses , & missed her while I spent days alone with out her . There are countless memories I have of watching my sister suffer , watching her be pricked , watching her spend months in a hospital , & always thinking how it skipped me . Those years of her being sick continued , until it didn’t . I lost Mary june 23rd 2019 . Mary died from the complications of CF. She was too small for a transplant and her lungs couldn’t serve her anymore . In October 2019  I gave birth to my baby girl Marlee , and the question I asked myself so many years “ how did I get so lucky , why am I not sick ?” Was answered . My baby girl was diagnosed with CF, it didn’t skip me and it didn’t end for me with Mary . Here I was still grieving the loss of my sister to cf , to be told my brand new baby would live with the same disease . Marlee is 3 now and doing wonderful . While she looks just like Mary , her health is so far a complete 360 . 

I am raising money and walkimg in hopes that my baby lives to see a cure . I am walking so that my sisters suffering was not in vain . I am walking for Marlee and Mary

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