Lee Senior

My wife Katie and I got involved with the Cystic Fibrosis Foundation in 2018 after we learned that our first son, Jack, had CF. We learned of his diagnosis during pregnancy and immediately began researching and learning about the disease and preparing for his arrival.

Jack was born 10 weeks early due to complications related to his CF diagnosis. While he was in the NICU at CHOP, we signed up for the Great Strides walk and began fundraising – we knew he would need treatments and support to manage his disease and getting involved with the Foundation and raising awareness and money gave us a sense of purpose and control during a time when we felt completely helpless.

Sadly, we lost Jack when he was 11 weeks old. The 2018 Great Strides walk was a week after he passed and we’d already raised some money and had such great support from friends and family that we felt like still participating in the walk was a way to honor our son. I think we decided then that we wanted to stay involved and continue to raise awareness and money in Jack’s memory.

Ultimately our hope is that part of Jack’s legacy will be that we’ve been able to play some small role in making the lives of individuals and families affected by CF better and hopefully one day help find a cure.

#untilitsdone