Mabyn's Proclaimers

We are excited for Great Strides Milwaukee 2024 and hope you can join us!

For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows-progressively limiting their ability to breathe and tragically shortening life. There are approximately 40,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk for them and for Mabyn!

Mabyn was diagnosed with cf at birth through her newborn screen. She has been taking medications, doing nebulized medications, and airway clearance since birth. Mabyn is a creative and imaginitive 8 year. She has played softball, soccer, and basketball in the last year. She’s a member of her school Brownie troop and is learning piano. Besides the normal day to day of a 8 year old, Mabyn’s normal daily CF rountine includes around 25 pills and vitamins,  1 airway clearance treatments, and nebulized medications. She visits the CF clinic every 3 months to see her CF care team at Children’s Wisconsin for check ups. Her check ups include pulmonary function testing, blood draws, and meeting with a team of health care providers that are commited to helping Mabyn stay healthy to do all the things 8 year olds do.

The mission of the Cystic Fibrosis Foundation is to cure CF and to improve the quality of life for all living with the disease. They have changed the face of this disease and given life and hope to the indiduals and families that have been affected. People with CF can now dream about attending college, having careers, and starting families. There are now 4 drugs that treat the underlying cause of the disease! Mabyn is now eligible for one of the CFTR modulator medications and has seen a dramatic improvement in her health! We couldn't be more grateful for the 67 years the CF Foundation has been relentlessly fundraising to support the research that goes into finding a cure for CF. The money raised is aggressively put to work! 

If you would like to help, please join our team, sponsor a walker, or make a donation! 

We appreciate you joining our team, the support you have shown our family, and most importantly, we appreciate you helping bring us closer to finding a cure for CF!

Adrienne, Mike, Mabyn, & Mirren