Join our team in 2023!
Team Lindsay's Lungs continues to be an active team in support of the Cystic Fibrosis Foundation. We raised over $500 last year with virtual fundraising and have raised just over $14,000 to date. WOW- We are thankful and blessed to have dedicated family and friends who have supported us along the way.
In 2019, a new medication for CF called Trikafta was approved for use by people with CF who have at least one copy of the delta F508 gene who are over the age of 13. It is a very expensive combination series of pills which costs annually over $200,000. This medication is made more affordable by financial supplementation by the CF Foundation. They were also instrumental in the research leading up to this drug's development! Lindsay has been trying this since 2/15/20, and we are hoping future research will minimize the need for her to continue additional treatments! She feels
great and continues to be an active high student, involved in swim team, forensics, mock trial, and robotics.
Do you want to be part of Lindsay's Lungs? All you need to do to become a member of our team is click on the "Join this Team" button. Or contact me at kkohn04@yahoo.com to let me know you are interested and I can sign you up. From there you can make a donation and start your fundraising. Wear your favorite RED shirt or past CF fundraising shirt!
By becoming a member of our team and/or making a donaton, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Thank you! We need you!
The Kohn Family:
Kirsten, Nick, Lindsay, Corbin and Jayce
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.