This year we are back in person for our annual CF walk!!!! Just a little update about Adalyn, is now 10 years old and growing up so fast.
There has been many advances in CF over the years and the biggest stride is the new medication for the double Delta F508 gene to help thin out mucus in the lungs to help you breath. Addy has started this medication!! Since we have started her lung function is back up to 100% which we have been struggling to get back too from the low 80's for the last 9 months.
This past year has been was a great year!! We had no hospitalization and stayed COVID FREE!
In 2021we were able to raise just $6,500 by wonderful donation from people like you thank you. We would like to pass that up this year again with your help. I will pass along our donation page if you would like to donate this year and we fully understand if you are not able to this year.
You can support us by making a donation online; simply go to www.cff.org/Greatstrides, click on donate, and look up our team "Walk with Adalyn." Please consider making a donation of $25, $50, $100 or whatever you can afford helps a great cause.
Thanks for all the continued support it is greatly appreciated.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.