My Cystic Fibrosis Story
Nearly 40,000 people in the United States have Cystic Fibrosis: a rare, progressive genetic disease that affects the lungs, pancreas, and other organs. As a 24 year old with CF, I hope that one day there will be a cure for Cystic Fibrosis to ensure we too get the chance to live a long, happy, & healthy life
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
My goal is to raise awareness surrounding Cystic Fibrosis, fundraise to continue medical research, support others who also have CF, & honor those who have unfortunately lost their battle.
You can support me!
By supporting this event, you have the opportunity to be part of ending this disease and making CF stand for Cure Found
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.