
Dear Family and Friends,
This year we are back in person for our annual CF walk!!!!
Just a little update about Adalyn, is now 10 years old and growing up so fast.
There has been many advances in CF over the years and the biggest stride is the new medication for the double Delta F508 gene to help thin out mucus in the lungs to help you breath. Addy has started this medication!! Since we have started her lung function is back up to 100% which we have been struggling to get back too from the low 80's for the last 9 months.
This past year has been was a great year!! We had no hospitalization and stayed COVID FREE!
In 2021we were able to raise just $6,500 by wonderful donation from people like you thank you. We would like to pass that up this year again with your help. I will pass along our donation page if you would like to donate this year and we fully understand if you are not able to this year.
You can support us by making a donation online; simply go to www.cff.org/Greatstrides, click on donate, and look up our team "Walk with Adalyn." Please consider making a donation of $25, $50, $100 or whatever you can afford To help a great cause.
Thanks for all the continued support it is greatly appreciated.
The Schienebeck's
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