Dear Family and Friends,
This year is a little different with all that is going on in the world we did not have a CF walk this year. I did not do any fundraising for I didn't want anyone to feel obligated to donate during these tuff times.
Just a little update about Adalyn, is now 9 years old and growing up so fast.
There has been many advances in CF over the years and the biggest stride is the new medication for the double Delta F508 gene to help thin out mucus in the lungs to help you breath. This new drug is not yet approved for children 12 and under so we have started the second best medication last January until we can start the new meds. It has been a year since we started the Symdeko and we are seeing much improvement in her health already!!!
This past year has been was a great year!! We had no hospitalization and stayed COVID FREE!
In 2019 we were able to raise just over $6,000 by wonderful donation from people like you thank you. We would like to pass that up this year again with your help. I will pass along our donation page if you would like to donate this year and we fully understand if you are not able to this year.
You can support us by making a donation online; simply go to www.cff.org/Greatstrides, click on donate, and look up our team "Walk with Adalyn."
Thanks for all the continued support it is greatly appreciated.
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This year is a little different with all that is going on in the world we did not have a CF walk this year. I did not do any fundraising for I didn't want anyone to feel obligated to donate during these tuff times.
Just a little update about Adalyn, is now 9 years old and growing up so fast.
There has been many advances in CF over the years and the biggest stride is the new medication for the double Delta F508 gene to help thin out mucus in the lungs to help you breath. This new drug is not yet approved for children 12 and under so we have started the second best medication last January until we can start the new meds. It has been a year since we started the Symdeko and we are seeing much improvement in her health already!!!
This past year has been was a great year!! We had no hospitalization and stayed COVID FREE!
In 2019 we were able to raise just over $6,000 by wonderful donation from people like you thank you. We would like to pass that up this year again with your help. I will pass along our donation page if you would like to donate this year and we fully understand if you are not able to this year.
You can support us by making a donation online; simply go to www.cff.org/Greatstrides, click on donate, and look up our team "Walk with Adalyn."
Thanks for all the continued support it is greatly appreciated.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.