This year is a little different with all that is going on in the world we did not have a CF walk this year. I did not do any fundraising for I didn't want anyone to feel obligated to donate during these tuff times.
Just a little update about Adalyn, is now 9 years old and growing up so fast.
There has been many advances in CF over the years and the biggest stride is the new medication for the double Delta F508 gene to help thin out mucus in the lungs to help you breath. This new drug is not yet approved for children 12 and under so we have started the second best medication last January until we can start the new meds. It has been a year since we started the Symdeko and we are seeing much improvement in her health already!!!
This past year has been was a great year!! We had no hospitalization and stayed COVID FREE!
In 2019 we were able to raise just over $6,000 by wonderful donation from people like you thank you. We would like to pass that up this year again with your help. I will pass along our donation page if you would like to donate this year and we fully understand if you are not able to this year.
You can support us by making a donation online; simply go to www.cff.org/Greatstrides, click on donate, and look up our team "Walk with Adalyn."
Thanks for all the continued support it is greatly appreciated.