Paige Wegner

Family and friends,

Our family is gearing up for the 18th year of participating in the Cystic Fibrosis Great Strides event, and we couldn't be more grateful for your ongoing support. We've got some exciting news to share with you in this year's Great Strides letter!

This year we hit a milestone in CF history. For the first time since Cole was born, the number of people living with CF has actually increased. For 18 years, the death rate always canceled out the birth rate, estimating that 30,000 people were living with CF in the US. This increase is a testament to the new medications that are being developed with the help of your donations. Without you, this wouldn't have happened. 

We feel fortunate that medications like Trikafta were made available to Cole when his health was at its lowest. His lung function was at 58, and he was continuing to be hospitalized several times a year with persistent lung illnesses. Now, his lung function is over 100, and for the first time since 2nd grade, Cole has not tested positive for pseudomonas and has been removed from two medications and one inhaler. It's truly been a game-changer for us, a miracle when we needed one. He can take a deep breathe and laugh now, without going into a coughing fit. 

We wanted to reach out and ask for your support once again. Your contribution will help fund research and new treatments that make a world of difference for those living with cystic fibrosis. Many CF mutations still don't have a CF modular, like the one that has significantly increased Cole's quality of life Your donation, no matter how big or small, brings us closer to finding a cure and miracle drugs for this disease.

Thank you for considering making a donation to the Cystic Fibrosis Great Strides event. Your support means everything to us and will truly change the lives of those affected by CF.

Click here to visit my personal page.

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If you want to walk with us on May 18th at Carson Park, please message me and I can guide you through the process. We'd love to have you join us and be a member of Cole's Crew. 

With love and gratitude,

The Wegner family