Team Lindsay's Lungs had a great year in 2019. We raised $2,200 last year and have raised just over $12,000 to date. WOW- We are thankful and blessed to have dedicated family and friends who have supported us along the way.
Last year, a new medication for CF called Trikafta was approved for use by people with CF who have at least one copy of the delta F508 gene who are over the age of 13. It is a very expensive combination series of pills which costs annually over $200,000. This medication is made more affordable by financial supplementation by the CF Foundation. They were also instrumental in the research leading up to this drug’s development! Lindsay has been trying this since 2/15/20, and we are hoping future research will minimize the need for her to continue additional treatments! She is feeling improvement already in a few short weeks.
Do you want to be part of Lindsay's Lungs? All we need you to do to become a member of our team is click on the "Join this Team" button. Or contact me at firstname.lastname@example.org to let me know you are interested and I can sign you up. From there you can make a donation and start your fundraising. Wear the updated RED shirts from last year or your favorite RED shirt!
By becoming a member of our team and/or making a donaton, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Thank you! We need you!
The Kohn Family Kirsten, Nick, Lindsay, Corbin and Jayce
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.