The Flaschberger family is excited to be back participating in a CF Foundation walk and raising money to find a cure for Cystic Fibrosis. 2023 was a busy year! In January Mason had his right kidney removed. He recovered quickly and you are barely see the scars. Violet Lorraine arrived on April 2nd and Mason loves his new baby sister. :) July 27th Mason started Trikafta. We started on a very low dose to protect his liver. He was doing super well (liver enzymes were a bit irritated, but quicker recovery with illnesses from school and he gained almost 4 pounds in 3 months)! In September he started Kindergarten. October was a rough month. Mason was hospitalized for Staphlococcus Scalded Skin Syndrome. It was a rough week, but Mayo did a fantastic job caring for him. He made it home October 30th and wanted to trick-or-treat the following night. During his hospital stay, his liver enzymes skyrocketed. Mason was taked off Trikafta. We are still routinely monitoring his labs in hopes he can start Trikafta again later in 2024.
When Mason was diagnosed in December of 2017, our world was changed forever. We didn’t know how much this disease would consume every aspect of our lives just as it affects every cell in Mason’s body. Our daily routines are not “normal.” The choices we make are different from others. We do life differently, but our family is resilient. We can take on any challenge and rise to it. “I am not afraid…I was born to do this,” Joan of Arc. We will get up every day and fight, #FlaschbergerFight. Please consider donating to our CF team.
Thank you for your continued support - Jared, Amanda, Lily, Mason, Wyatt & Violet Flaschberger
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.