Lindy Swatkowski

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.

This year Salty Toes will be walking for my niece Arya and nephew Ivan.  Arya and Ivan were diagnosed as infants with cystic fibrosis. Our team name "Salty Toes" is in honor of their little toes.  One side effect of CF is that her body loses more salt through sweating, which is why they have salty toes:)

Arya is in first grade this year, she dreams of being a scientist and wants to spend her days making slime. Mom and Dad see her more as a storyteller or actress.  Arya continues to thrive on new medications newly available to the younger ages of kids with CF.  Trikafta has been a wonderful medication that she was able to start after her 6th birthday. She has had a good response to this drug and we are so thankful!

Ivan has had a good year and is growing up so fast. He is as sweet as can be and will melt you with his dimples and hugs.   He can be found running around the house chasing his sister, and when the weather is nice he only wants to be outside. He still enjoys snuggle time and will repeatedly do every puzzle in the house.  Ivan is obsessed with Halloween and will talk your ear off about zombies, vampires, and werewolves, he is so silly.  A new medication, Orkambi, has been available to him.  He has responded well, and gained some weight(his CF team was happy to see this)

Although both children are doing well and thriving, there is still no cure for CF.  Their days consist of many treatments with the percussion-vest and nebulizer treatments to loosen mucus in their lungs.  Both kids need to take many medications with their meals to be able to properly digest food.  

I have been so proud of Elizabeth and Calvin beginning this path with Arya and Ivan. They are amazing parents. Thank you to all who have donated, or participating in this walk with us.  We are blessed to have such great family and friends supporting Arya and Ivan.  

Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!

Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.

Please support me!

Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.