There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers. Two of them are our precious grandchildren, Arya & Ivan. We walk with great hope for the advances that the CF Foundation have give these two. Arya is now on Trikafta and Ivan takes Orkambi. Hopefully this is the year that Trikafta will be approved for his age group! These are not cures, but they offer so many more healthy days than have ever been possible before. We want to find a cure for this condition. The CF foundation actually develops medications that Arya and Ivan are using to keep their lungs and bodies healthy. They also offer guidance and support to parents walking this road with their children.
We hope you will come walk with us this year, and help the CF Foundation in their work to find the cure for this condition. We won’t stop until CF stands for CURE FOUND!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.